Saturday, August 11, 2012

Day of Milestones

Yesterday was a good day -- Sawyer finished driver's ed, drove to his appointment for the first time (previously he'd driven most of the way up 390 then switched with me, but yesterday he went the whole way, ending in the hospital parking garage), and most importantly he is now officially in the maintenance phase! It will take his body a few months to really recover from the last 10 months but he will soon start to feel better. He'll be on 3 different medicines at home during this phase (which will last until January 2015) and continue to get vincristine and methotrexate at the clinic appointments but they will be spaced out about once a month, with the occasional spinal tap to get methotrexate to protect his brain.

His appointment was only about half an hour long -- so much different from our last many months where they lasted 3 - 5 hours. He received quick injections of vincristine and methotrexate. They'll probably hit his system on Monday so he'll just take it easy through the weekend to reserve energy.

I asked the doctor what the likelihood is of him falling out of remission at this point, and he said it's very small since he's made it this far. And it gets better as time goes on. But there's always that chance.....

The next appointment is in two weeks. In the meantime Sawyer will be spending the next week in Cape Cod on vacation (we leave this morning!), working on his AP class summer homework and trying to put together his Eagle Scout project planning packet.

We'll keep adding posts to the blog but they will be much more spaced out now. We sincerely appreciate the continued support of everyone; please know it has made a huge difference!

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