For the most part, this has been a wonderfully uneventful weekend. On Friday, one of Sawyer's best friends stayed over night. It's amazing what we (his parents) took for granted in the past because it is particularly enjoyable to watch Sawyer behave like a fairly normal kid. He and Zach played video games, talked and laughed. In addition to their normal socializing, Sawyer and Zach spent a couple hours on Saturday digging into the back log of assignments for his computer programming class. Sawyer has amazing friends who have helped him with his homework, shaved their heads as a sign of solidarity and designed and sold t-shirt as a fund raiser. We are not sure where we would be without this impressive cadre of buds.
As many folks are aware, prednisone is not all sunshine and roses. Sawyer took his last dose of prednisone on Thursday and has been increasingly hobbled over the past several days. Apparently one of the withdrawal symptoms is joint pain. Sawyer's knees have been giving him fits. The pain keeps him awake at night and makes it difficult for him to ambulate comfortably. He walks rather stiff legged and finds some relief when he applies heat (the hot tub is coming in very handy right now). That and a little morphine helps to take the edge off. Hopefully tonight he will sleep a better than the past two nights.He needs the sleep to stay healthy and fight off infection. Fortunately he is not receiving a full dose of chemo tomorrow so his immune system should not be compromised (i.e. he will not be neutropenic).
On a related note, tomorrow is a fairly big day. He will undergo a bone marrow biopsy and a lumbar puncture (to have chemo inserted into his spinal fluid). We will not get the results of the biopsy until Tuesday or Wednesday. As note in previous posts, we expect (hope and pray) that the leukemia cells have been sufficiently 'blown up' and no longer present.
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