Yesterday was the first day that we were supposed to administer Sawyer's chemo via his powerport. Mark went home during the noon hour to meet with the nurse to observe and learn. Upon arrival a nurse was not at the house nor did one call to say that she/he would be arriving anytime soon. Mark called Sonja, the visiting nurse assigned to Sawyer, who reported that she was on her way. She arrived around 12:30pm and reported that she will come each day that Sawyer needs chemo via his port. This was very welcome news which became more welcome when she had a slight problem with the initial saline flush. Apparently the port was a little clogged requiring what Sonja referred to as a 'power flush.' Thankfully she was there to know what to do since we would have struggled (i.e. panicked) if we were flying solo and had to deal with this glitch.
Sawyer's physical condition remains fairly unchanged. He remains very tired, with minor headaches and a backache that is slowly getting better. This is understandable considering his body is trying to process three kinds of chemo this week.Watching the physical debilitation is very difficult, but we remain steadfastly hopeful if not absolutely confident that this too will pass.
Yesterday Mark met an AU student that was diagnosed with Hodgkins Lymphoma at the age of 16 (the same age as Sawyer). This remarkable young man noted that he went from 160lbs to 125lbs during the course of his treatment and is now in full remission and only one month from being declared cured.. His comments reflected the same level of self-assuredness that Sawyer has displayed over the past month. Such encounters are so very important, encouraging and welcome at this time when the silver lining is visible, but sadly distant and just out of reach.
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