Friday, October 21, 2011

Just waiting

Last night was fairly quiet after we got settled into the room. Sawyer slept mostly okay except he said he was worried he'd pull  the IV out of his arm while he was sleeping so he was pretty conscious of that all night. I slept okay but since I'm not good with noise while I sleep it's hard for me to sleep deeply with things like voices, room heater fan, beeping IV feed, etc.
Mark will be back shortly with a few things from home. My mom is going to stay at our house this weekend (she was already planning on it since we were all supposed to be on our way to the Adirondacks today - but we already have reservations to go after Christmas so we won't be away too long!).
We're waiting for them to take Sawyer to surgery to be knocked out again for a spinal tap and placement of a "disc" in his upper chest that will be the entry for his meds and for blood draws. He'll have it in for about 3 years (length of the treatment). He will get his first chemo dose at the same time they do the spinal tap - just an initial shot to get some meds into his system. The spinal tap is to check to see if the leukemia is in the nervous system or not - it will help them decide which treatment to do.
The one downside to today is that Sawyer hasn't had any food or liquid since about 8 pm last night - and we don't know when he'll go for the surgery - they'll fit him in the schedule as soon as possible.
We have had 3 offers for small refrigerators (thank you!) so we should be set. The nurses say we can make this place as much like home as possible - posters, photos, lights, comforters, etc, etc - which is wonderful.We'll be making lists of small things to pick up locally and a few things to bring from home. I told the nurse this morning that when we leave we'll probably feel like we're moving out of a residence hall and wonder how we accumulated so much stuff in such a small space (actually we have quite a bit of elbow room since it's a double room).
The small kitchen on the ward is stocked with juices, snacks and even ice cream! And a Keurig machine so we'll be able to make our own coffee without spending a fortune at the coffee shop in the lobby (but I've been told I have to try out the chocolate chip cookies from there from an expert!)
He does have a window to look out but unfortunately the view is a brick wall and a couple windows.
Wonderful colleagues and friends at Alfred University have already purchased an iPad for Sawyer!
Continued thank yous to everyone for your emails and best wishes.We'll make it through with flying colors thanks to all your love and support!



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