".. except for the cancer." I laughed when I heard Sawyer tell this to one of his classmates visiting this afternoon (she was a lively ball of energy intent on catching him up with all the school news). She brought a great card made by some of the students and signed by many more. Many of their get well wishes brought smiles and laughs to us all, as are the humorous get-well cards coming in the mail.
He spent some time with the tutor this afternoon. He got to load up his laptop and material and walk out of the unit down to her office. He needs to wear a mask anytime he's out of the room but was able to take it off once he got there. More of his homework was delivered tonight from the school by a friend of ours who picked it up. She also brought along a signed and framed photo from his soccer team.
We'll be interested to see what Halloween brings to the hospital. There aren't too many decorations up but I imagine we'll see some nurses in costume, plus someone said there's a big parade where the kids can "trick-or-treat" at the offices on this floor. I hope they come by our room since we have enough candy to hand out to everyone! I fully expect to gain a few pounds just sampling it! Luckily we got some fresh fruit today to offset that.
The hospital offers a variety of organized activities to keep kids busy: the typical crafts and bingo but music and pet therapy as well. Sawyer was offered the chance to learn to play the guitar with the music therapist but wasn't interested. We haven't seen the pet therapist yet but that would be a great visit.
We had another day of visits by a variety of friends who came with a variety of gifts -- thank you for helping to break up the day. One visitor was a librarian for one of our local public libraries who really helped define the notion of deliveries for the "homebound." She brought Sawyer some newly released movies that he's been wanting to see.
According to his "chemo roadmap" he shouldn't be getting any more chemo drugs through his IV port until Saturday. Which gives his immune system a couple more days to rebuild. He'll have another spinal tap (lumbar puncture) on Friday where they'll inject some chemo into his spinal fluid as a precaution. Apparently until the late 1980s doctors didn't realize that leukemia cells could live in the spinal fluid. They would get rid of the cells elsewhere and think the person was all set only to have it come back because the cells were hiding. But now they know and give treatments in the spine as well. Sawyer didn't have any leukemia cells in his spinal fluid but they're treating it anyway. The only downside to the procedure is that he can't eat or drink anything for many hours beforehand (since they knock him out for it) so it will be a day of feeling hungry and thirsty for awhile. We don't know yet what time it's scheduled for.
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