Thursday, October 20, 2011

More news

Well, we now know for sure that it is acute leukemia. Sawyer will be admitted to Children's Hospital tonight; we're just waiting for them to tell us there's a room available. Once I know his room number I'll let you know.
Test results tonight should tell us what type of leukemia, either ALL or AML. Keep your fingers crossed for ALL - it's easier to treat and has a higher success rate for remission. Either way he'll get chemotherapy, which they expect to start tomorrow. He will probably start to lose his hair in a week or so, but it will grow back after the treatments are over.
If he has ALL, the complete treatment time is about 3 years - with the intensive part happening in the first 6 months. If he as AML, the treatment time is about 6 months total (it's much more intensive).
Tomorrow they will do a spinal tap (and yes, thankfully, he'll be asleep for that) as well as install a "central line" in his chest as a way to administer fluids and drugs without having to keeping poking him. That will be a small surgical process done at the same time he's out for the spinal tap.
The weird thing is that he looks (and mostly feels) healthy. He doesn't have the normal symptoms like bruises, swollen lymph glands and other such maladies.
The treatment for leukemia is standard across all hospitals - they'll do the same thing/approach here that would be done in any other major hospital, which is reassuring. We have full faith in the folks at Strong - they are really exceptional in their approach and handling of everything. They even have staff whose job it is to entertain and distract the patients. Sawyer seems to have connected with that part -- he was playing on a loaned iPad while having things done to him to get ready for the bone marrow test this morning.
Apparently most leukemia patients don't need radiation or bone marrow transplants - chemotherapy generally puts them in remission within a month. Ongoing treatments are meant to help them stay in remission.
I guess we can expect him to be in the hospital at least 3 weeks. We're going to be working with his school to set up tutors and keep him on top of his classwork. Luckily the children's ward has all sorts of games, entertainment systems and even an outdoor court to help him pass the time.
Sawyer is handling the ongoing bad news remarkably well. I think that it's starting to sink in a bit more as time goes on but he's keeping an open mind and staying positive. Mark and I are also doing pretty well. I know that Sawyer appreciates everyone's support and thoughts and messages - he definitely likes to be able to laugh at things people are saying as well as staying in touch with his friends.
Visitors are welcome - the hospital allows visitors every day until 8 pm. Probably not a bad idea to call us before hand if necessary to make sure he's feeling up to it, and early morning visits (before 10) might be best to avoid since that's when the doctors typically make their rounds.
We are very, very appreciative of the outpouring of support we are getting from everyone. You are all amazing! We know that you will be the reason for us getting through this with flying colors!

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