Settled in our new home away from home

We are now hanging out on the fourth floor of the children's wing in their adolescent ward (room 1415). Sawyer has access to a Rec room, an outdoor court area, stocked kitchen area, room service, private bath and shower. One of his nurses has had the exact same type of leukemia and was treated in the same place with the same doctors and will be an excellent role model for him. She is the picture of perfect health.

This room is a double so I'll have an actual bed to sleep in for now. They plan on keeping him alone in the double room for as long as possible, then move him to a private single room if needed. They want him to always be the only one in the room to lower the possibility of outside germs since his immune system is going to be knocked out.

Mark has gone home for the night to pick up some stuff for us and will return in the morning. Then he and I can fight for the bed! Actually there is a large chair that folds down into a bed that we can use too.

They said Sawyer will probably be here for a month. Not a pleasant thought but the staff are making every effort to make sure we are as comfortable as possible. I imagine we'll become very familiar with the area restaurants and will make many trips to Wegmans for basic supplies. We can store food here as well in their small kitchen and do cooking as well in the microwave. They might even find a small dorm fridge for our room. If not they said we could bring one in if we had one.

Calls, emails and texts are a welcome distraction so don't hesitate if you want to be in touch.

Now it's time to turn on my librarian skills and see what I can discover about ALL b-lymphoblastic acute leukemia. I'll know more medical terms in the next few weeks than I want to!